Introductions

Sleepyhead: Hiya I'm sleepyhead, aka Kirsty. I'm 21 and live in Birmingham, but also spend a lot of time in Telford with my boyfriend. I've had M.E for 6 years now. I'm about to start my final year at University of a Primary Education degree to become a teacher!

I'm really looking forward to getting to know you all.

mbali12: Hey everyone I am Natalie (you can call me Nat) I am 22 yrs old and I was diagnosed with M.E and fibro 2 years ago but like a lot of people I believe I have had the both a lot longer dating back to when I was 14 yrs old but one doctor said I was just a lazy teenager and that I should get my act together and stop pretending...I might add I know longer see this doctor!!! I live with my mum, older sister and her 2 children my niece and nephew and my older brother...oh yeah and not forgetting my two gorgeous cats Marley and Tinkerbelle. I am engaged to a lovely man called Mark we have been together for 2 years, we had only been together for 9 months when I became really ill and it felt like over night I became very dependent on him. We had loads of chats and I told him I would understand if he know longer wanted to be with me but luckily he said know way I am going to stay with you and fight this together. He works full time and lives in his own flat but he is main carer as he comes round every night straight from work and helps me with things like if I want a shower or I have got one of them annoying forms from the benefits!! He never goes home until he see's me taking my night time tablets!! My sister looks after me during the day but she is also very busy as she is our mum's full time carer and she has also got a 11 year old daughter and a 10 month old son. I have to use a crutch to help me get around the house and when I get the odd chance of going out I use y top of the range wheelchair!! I have decorated them both with leopard print material...I still need to look stylish. Before I was ill I was very active, I lead an art and drama group for children in care and I also went into secondary schools delivering acting, singing and art workshops all to do with different issues the young people might face. I also started to do some professional acting with a local small theatre group touring around the local primary schools doing 4 short Theatre In Education plays and workshops in conjunction with the NSPCC. I also met my fiancé at a amdram musical theatre drama society, we played boyfriend and girlfriend in the panto!!! One day I hope that I will be able to go back on the stage as this is all in know I have been doing it since I was 9 years old and it has given me some many experiences and opportunities, when I was 16yrs old I went over to South Africa for a month with a drama group I belonged to and we performed with students from the market theatre in jo'burg and then the year after I performed in Poland.

silver2529: Not good at these intro things, but in time I hope to get to know you better through the boards!

Here is a bit about me: 28, from USA, interests: my cat, beading, visual communication, drumming4 health& self expression. CFS: diagnosed in 2002, It came out of nowhere& changed my life completely!

--___--AngeL--___--1 Hi I'm Yvonne. I live in Reading with my husband Phil. We got married on the 26th July this year and our day was brilliant. I suffer from Fibromyalgia, M.E. Degenerative Discs n Faucets, Osteoarthritis, IBS n Hypoglycemia Migraines. I am a full time carer to my fiancé Phil who is a full time wheelchair user thanks to Friedreich's Ataxia. My daughter Elizabeth (Lizzie) n Lizzie's boyfriend Danny, my son Paul is n his girlfriend Manda are all at uni in Derby. I also have a daughter called Yvonne (Vonnie), she lives with my lovely grandson Jordan whose 2, 3 at the end of September. Everyday life is a struggle but we always manage to get through it (although I don't know how at times). Phil is my soul mate, he is always there for me. He has turned my life around n swept me off my feet at our wedding. Although he can't walk, he helps in other ways. He makes me laugh n smile n is always there to sort out any probs. I love him very much. This is a fantastic group, full of support for every1, there will always be some1 who can help if you have a prob. This is a very friendly group. It is an honour to be part of this group. Newbies plz don't be shy come n say hello to every1. Plz take care. Gentle huggies to you all.

Angel xx

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Member of the Month!

Click here to help the Management congratulate Jasminola!

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Trivia Champion!

Congratulations Jasmine! 

Page Two

Newsletter Archives

To M.E. or not to M.E. Preview
 

New Members in August

Branflaked1
cmrtaman07
Dylan-Paul
LOU
madchatterjo
mbali12
silver2529
sleepyhead
stewiii0
villawend

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Birthdays

September 4: Mellie

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Anniversaries

September 10: Helen
September 19: Steve and Cath
September 24: Clare and Dave

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August in Review

Angel:  Hi Every1,

Well it was a very busy month for Phil & myself. We came back from our honeymoon on the 3rd August and we had a wonderful time. We took 2 carers with us and for the 1st time in over 5 years I had a complete break. I could swim in the hotel swimming pool, go shopping, sleep when I needed to & even go to the pub LOL. I came back totally refreshed and recharged. While we were away on our honeymoon the carers, Phil and I sorted out about them both being private carers for us and moving in. We knew the carers well, had even partied with some of their friends, and their friends who took us in as their own family even came to the wedding which did add to making our day extra special. Its been hectic since we got back, the carers resigned from GP Homecare. But... all the good carers are leaving, as the office staff have no idea how to run the company and expect their to work 16 hours a day. The day after we got back GP Homecare cancelled all of Phil's calls and it was Damian that stepped in and said he would do the calls for Phil even thou he was working at the hospital. Today Damian and Agnes have moved in
and Agnes has gone back to Poland and Damian will be following her next Thursday. They come back on the 13th September and will be starting straight away. In the meantime we have a fantastic carer called Marcella, the 1st time she came in to help with Phil she got the routine straight away and we've never had any probs. Marcella will be coming everyday to see to Phil while Damian & Agnes are away. That is when I get my life back and I can take care of myself better by being able to attend appointments etc. We've been busy collecting all the videos and piccies from the wedding so Phil's cousin Dave can put it on to DVD for us. So if you all would like 1 plz email me on Ill_be_your_angel@hotmail.co.uk with your home address and as soon as they are done I will send them out to you.

Our thoughts and prayers are with Shell.  Her mom was diagnosed with breast cancer this month, underwent a lumpectomy and is now waiting results of the biopsy of her lymph glands.  Hugs, Shell!

 Our thoughts and prayers are also with Allie as she walks through the same journey with her friend. 

Teri:  Well, at 56 years old, I went back to school this month.  Wow!  It not like going to school when you're young! lol.  I have been to massage school before and attained a license to practice but let that license lapse when I decided to stay home and home school my kids.  Getting it back is sooooo much more difficult than it would have been to keep it!  However, I'm learning lots of new things and I'll be a much better therapist for it.  I'm also working on attaining my Masters in Reiki.  What this means is that I've barely time to breath.  I'm excited about what I'm learning though and that keeps me going.......... well.... that and the thought that I only have to live in this pressure cooker for a year lol.

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Introductions Continued..............

UnweariedStevie: Hi all, I am Steve, 47, male, good lookin, married with 2 kids. In Full time employment even over the 11 years I have had ME.

Triggered by Chicken pox, glandular fever and Pneumonia I am much improved by being positive and trying several therapies and supplements.

I was one of the original founders of this group helping to set it up but had to bow out gracefully due to increasing commitments to my business www.kontrolsports.co.uk which is doing very well... recent page rank of 3! and hoping to give up the fulltime day job soon to take the business further.

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Article of the Month

Drugs versus Nutritional Medicine for Common Health Complaints
by Jerome Burne (more info)
listed in nutrition, originally published in issue 134 - April 2007

These days we are all pretty sophisticated about the gap between rhetoric and reality. Our detectors are finely tuned when it comes to sniffing out the hype in adverts or the promises of political parties, but they all-too-often become curiously disconnected when faced with claims about the benefits of drugs. Maybe it’s because drugs offer a quick fix when we are at our most vulnerable that we yearn to believe they are somehow not so tainted with the hucksterism of the marketplace as, say, double-glazing or life insurance.

Click here for the rest of the article: 

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Remember, From M.E. to You has become a collaborative effort.  With Teri's school schedule she just isn't able to write 3 to 5 pages anymore.  If any of you would like to contribute to our newsletter, please e-mail Teri or sign up on the Newsletter Message Board.  Thanks!